Sunday, August 23, 2009

Under Siege

Camp was good. GL worked hard, had fun, and accomplished things he'd never tried before. Mama Bear and Brother Bear got to relax and have fun. I had some much-needed quiet, even if I didn't feel up to much. MB will fill in the details when she is up to it.

Since camp, we have been under siege. We expect some difficulty when GL has a major disruption of his routine, and then has to adapt to everyday life again, but each day since camp has been worse. His meds weren't working all that well before camp, so his doctor changed dosages, and now they seem to have stopped working entirely.

When he starts a new med, we usually see some improvement in the first week, and more improvement once we find the right dose. Whenever he has a growth spurt, we have to adjust his dose again. At some point, each med will abruptly stop working at any dose, and we have to switch. A new med typically works for six to eighteen months, with twelve months being about average. He has been on this med for two years. It's been very good most of that time, and I hate to switch until we have to, because what do we do when we run out of meds to try? But this is not working. He has beaten up or attempted to beat up every family member every day for a week. He is usually screaming about not being allowed to do things that are impossible, or don't even make sense. We're calling the doctor in the morning.

1 Comments:

Blogger Bob Wingate said...

I don't know what to say except that I hope the Doctor has an approach that will work, some positive news for GL and your family. You are all in my prayers.

August 26, 2009 at 6:24 PM  

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