Sunday, June 12, 2011


It's hard to find enough time to blog lately. GL's IEP is signed, sealed, and delivered. BB is getting better at mowing, but I still have to check his work. Baseball season is underway. After last season, when nearly every game was rained out, partly due to a lot of rainy Saturdays, and partly due to the low-lying location of the park, which seems to flood every time there's a sprinkle, and the Parks Department giving us a hassle about rescheduling games, (they won't let us play if the grass is wet, but they don't want to let us schedule a makeup game either) we (or I should say the league president) got us moved to the main baseball park, where all the regular Little League teams play, instead of the old park, where they had been sticking us because, even though we are also members of Little League International, in the city's eyes, Challenger Division is apparently the read-headed stepchild. We play at 9 a.m., and have to be off the field at 10 a.m., when the regular Little League teams arrive.

The first game of the season, the the weather was sunny, with a temperature in the upper 90's. And the city had locked us out of the dugouts. I'd never heard of dugouts that could be locked before, but these have a chain link fence from the ground to the roof, and a padlocked gate at the entrance. The head of the Parks Department had decided that the new dugouts "didn't look nice enough," and his solution was to lock the kids out. Some of these kids have difficulty thermoregulating. This is, after all, a league for children with disabilites. At the old park, they could have at least found shade under one of many large trees. The new park was built only two or three years ago. There are six diamonds, and I don't think there's a tree within a half mile of home plate on any of them. The Parks Department did provide two Easy-Up shelters, each about a third the size of a dugout, as the only shade for six teams. Besides being rather small for the size of the group, they were secured to the ground behind two of the dugouts. If your child were playing on that field, he or she could stand in the shade or watch the game, but not both. And only two dugouts (out of 12) even had a shade nearby. Not to mention these shelters don't provide much shade between 9 and 10 a.m. The good news is that the other Little League teams were locked out, too, and their complaints get taken much more seriously. Their complaints made the news on TV.

GL's strength and coordination got worse, while his tremors increased, he started sleeping more, (12-15 hrs a day) and occasionally drooling. His psychiatrist reduced one of his meds, and we're starting to see some improvement. His pediatrician referred him to a neurologist, who is starting with an EEG, to see if there is anything else going on.

We had bought tickets to the high school's end-of-the-year talent show, but when we arrived, everyone was standing outside on the sidewalk or in the parking lot. There were a fire truck, and ambulance, and several police cars in front of the building. We heard sirens, and a fire truck and an ambulance arrived from a neighboring town. The school psychologist recognized us from the IEP process, flagged us down, and filled us in. One of the lights in the auditorium had "popped", releasing a large cloud of smoke, which had set of the fire alarm. The fire department is right across the street, so they arrived right away. The building was quickly evacuated, but they had to wait for the smoke to clear (and clean up the broken glass, I imagine) before they could let people back in. Since we live less than a mile from the school, we went home to wait. We checked back several times, but they eventually canceled the show for the night. They rescheduled the show for a couple weeks later, and we attended. GL enjoyed the show, and several people recognized and greeted him in the hallway during intermission. The special ed class put on a substantial portion of the show, (about half of the first act) and it was good to see how well it was received by the other students and parents.

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Blogger Brian@bothsidesofthecoin said...

That sounds great for the special ed class. In my school, there is really a cool relationship between all the people with different needs and the NT kids. They get along pretty well, and get a kick out of each other most of the time. I'll be following this story.

June 13, 2011 at 7:26 PM  

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