tag:blogger.com,1999:blog-3905784875304026020.post3897584026931319304..comments2023-06-01T07:35:55.778-05:00Comments on Goldilocks and the Three Bears: MedicationDaniel "Captain" Kirkhttp://www.blogger.com/profile/01417084546817010038noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3905784875304026020.post-41830808276882965522012-02-18T19:29:10.107-06:002012-02-18T19:29:10.107-06:00Figuring out the right meds is HARD work. Having t...Figuring out the right meds is HARD work. Having to work with a professional who doesn't "get" it is stressful. My first psych doc didn't believe my oldest was bipolar because he was so charming during the 10 minute appt. I dragged my son in during one of his spots, and then the psych doc. kinda got it. Still didn't think bipolar.<br /><br />Then my bipolar son was in his suicide spot, and I insisted that the psych doc. start a bipolar med. The psych said, let's wait through the weekend. I figured there was a reason for it, but I didn't get far out of the office before there was another huge episode, so I called back. Still insisted on waiting until Monday. Suicide watch is STRESSFUL. All weekend came and went by his side on high alert. Monday comes, and the psych doc says, "Well, it was just three days." WHOA! Has he never been with someone who was suicidal? JUST three days?! Fired.<br /><br />And yes, the med did work that I insisted on ... after 1.5 YEARS of on again, off again, suicide. UGH! As parents, WE must be educated to get really good care ...<br /><br />Know that I understand and believe.Cindyhttps://www.blogger.com/profile/11452795238901796924noreply@blogger.comtag:blogger.com,1999:blog-3905784875304026020.post-81958722724100779912012-01-25T21:40:30.865-06:002012-01-25T21:40:30.865-06:00Wow. Reading that upped my blood pressure a bit. I...Wow. Reading that upped my blood pressure a bit. It brought back memories of my husband and I going through Due Process with our school district over Cody being in the least restritive environment. (BTW- We won.)<br /><br />Hang in there and stick with your gut! Please keep us posted.dluvscokehttps://www.blogger.com/profile/07642878004500984589noreply@blogger.comtag:blogger.com,1999:blog-3905784875304026020.post-83462291991585021812012-01-25T12:51:20.191-06:002012-01-25T12:51:20.191-06:00I linked to your blog on my IEP Meme post today. I...I linked to your blog on my IEP Meme post today. I said that your post was great and kinda sorta already filled the Meme request - talking about our kiddos' IEPs: what they do or do not get.<br /><br />But more important than the IEP bit is the part you wrote about the professionals not getting it - unless they live it. THAT needs to be sent to every professional on the planet. Or, they need to be encamped for a few months with a special needs family as part of their hands-on training. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3905784875304026020.post-11411673176606968152012-01-24T21:03:02.770-06:002012-01-24T21:03:02.770-06:00Thank you for your blog. It's so good to talk ...Thank you for your blog. It's so good to talk to someone else who "gets" what I'm talking about!Daniel "Captain" Kirkhttps://www.blogger.com/profile/01417084546817010038noreply@blogger.comtag:blogger.com,1999:blog-3905784875304026020.post-60676791908062412802012-01-24T20:04:09.273-06:002012-01-24T20:04:09.273-06:00I don't know if this was directed towards me o...I don't know if this was directed towards me or not. I will say that: THIS. THIS IS MY SON. Everything you have written here (with exception of the "kill" thing, but only because he hasn't been exposed to that word yet) describes Ted perfectly.<br /><br />I have had people tell me he was too cute, too precious, too *insert adjective here* to be the way I described. I had to resort to taking video and pictures because no one would believe me. I made audio recordings of his meltdowns. I documented. I cried.<br /><br />We FINALLY got him on meds. At 30 months old. We are now on our third atypical antipsychotic. We are on our third stimulant, and just tried an SSRI (Zoloft), but it caused excessive bleeding.<br /><br />He metabolizes like a, well, I won't swear on your blog, but you know what I mean.<br /><br />There are two Teds. There is "happy" or regular Ted. And there is OUT OF CONTROL Ted. When OOC Ted is in the hizous, forget about it. It is all done. The days, or weeks are crap and it is like he sucks the will to live right out of our souls.<br /><br />Happy Ted is a ray of sunshine.<br /><br />In short, this kid is an exhausting ball of energy that sometimes feels like he IS killing me. Slowly. Dear God, ever so slowly.<br /><br />We are on Abilify, too. :) It works. We know it does because when we tried to ween him down because of high cholesterol, life sucked in a major, major way. Back on "Vitamin A". Hoping to try Depakote by the end of this week.<br /><br />Such is our life.<br /><br />Reading your post was amazing. Like I say, This is Ted. It is incredible to read about another child so similar. Especially when people like our psychiatrist try to tell us that he is too social to be autistic. <br /><br />Thank you for writing this.Anonymousnoreply@blogger.com